Hospital regrets 'communication breakdown' with Ashya's parents

Dr Michael Marsh, medical director at University Hospital Southampton

Dr Michael Marsh, medical director at University Hospital Southampton

First published in News Daily Echo: Photograph of the Author by , Health Reporter

HOSPITAL chiefs in Southampton say they regret the “communication breakdown” with the parents of Ashya King.

The five-year-old, who suffers from a brain tumour, went missing from Southampton General Hospital last Thursday when his parents Brett and Neghmeh took him from his ward and left for Europe to try and secure a new treatment for him.

It prompted an international police search for the family, who were discovered in Spain with Ashya’s parents subsequently arrested.

Daily Echo:

Brett and Naghmeh King

Over the weekend Mr King said the hospital refused to consider the proton beam treatment and described the UK medical system as “cruel.”

But Dr Michael Marsh, medical director at University Hospital Southampton NHS Foundation Trust, which runs the hospital, has defended its doctors and said staff’s first concern was for Ashya’s health.

He said: “The chances of surviving the condition Ashya has are about 70-80 per cent after five years so we believe that he has a good chance of a successful outcome provided he gets access to the most appropriate treatment.

“We have discussed proton beam radiotherapy with Ashya’s family and there are some tumours that respond well to this type of treatment, but there are some cases where there isn’t the evidence that this is a beneficial treatment. Where the evidence supports this treatment we have made a referral and patients have been treated abroad.”

Dr Marsh added: “As events have unfolded we recognise that this must be a very distressing situation for the family. In situations where children who might be very young are suffering from life-threatening illnesses it is vital that a relationship is maintained between the family and medical staff so that treatment options can be openly discussed and agreed.

Daily Echo: Ashya King, who has a brain tumour and was taken by his parents from hospital without the blessing of doctors (Hampshire Police/PA)

Ashya King

“We very much regret that the communication and relationship with the King family had broken down in this way and that for whatever reason they have lost confidence in us. Our first concern is for Ashya’s welfare and we are working with the police and the team in Spain to help him get the best care possible.”

Mr and Mrs King have been detained by a Spanish court while a judge decides whether to bring any case against them.

Police launched the search on grounds Ashya’s life could be at risk, particularly as he requires a feeding tube which police feared would run out of battery, although the family disputed there was any problem with the tube.

Dr Marsh added: “We were really concerned about Ashya’s welfare when he went missing from our hospital last Friday and for a period of time we had no idea where he was or what his parents’ intentions were.

“It is possible for parents to care for a child who is being fed through a nasogastric tube. However there are a number of risks that need to be managed and it is vitally important that this is properly supervised with close contact between the family and the medical and nursing team.

“The search for Ashya that was led by Hampshire Police has thankfully been successful. We are grateful for their efforts which have meant Ashya is under the care of a clinical team in Spain.”

Comments (21)

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6:24pm Mon 1 Sep 14

saintsfan76 says...

A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure. saintsfan76
  • Score: 0

6:33pm Mon 1 Sep 14

mickey01 says...

A case of damned if they do and damned if they dont i suppose
A case of damned if they do and damned if they dont i suppose mickey01
  • Score: 25

6:45pm Mon 1 Sep 14

lastminmoran says...

The line.. lost confidence in us' is something that has become what many people in the u.k. feel about most things. In regards to this very sad case number 1 priority must be the child! and yet the feeling of panic and desperation by the parents to go to the lengths they have is once again very disturbing set against what the powers that be have forced them into...TRUST IS IN SUCH SHORT SUPPLY AND I'M NOT SURE THEY ARE IN THE INTERESTS OF THE PEOPLE ANYMORE!!!! IN MANY SUBTLE WAYS ARE THEY PUSHING US INTO A CORNER???it was interesting to note the phone -in on the bbc ask..what lengths would you go to to protect your child????DO THEY NEED A 2 HOUR SHOW TO KNOW THE ANSWER????WHAT IS THIS COUNTRY UP TO?
The line.. lost confidence in us' is something that has become what many people in the u.k. feel about most things. In regards to this very sad case number 1 priority must be the child! and yet the feeling of panic and desperation by the parents to go to the lengths they have is once again very disturbing set against what the powers that be have forced them into...TRUST IS IN SUCH SHORT SUPPLY AND I'M NOT SURE THEY ARE IN THE INTERESTS OF THE PEOPLE ANYMORE!!!! IN MANY SUBTLE WAYS ARE THEY PUSHING US INTO A CORNER???it was interesting to note the phone -in on the bbc ask..what lengths would you go to to protect your child????DO THEY NEED A 2 HOUR SHOW TO KNOW THE ANSWER????WHAT IS THIS COUNTRY UP TO? lastminmoran
  • Score: -6

7:01pm Mon 1 Sep 14

befriendly says...

SO, with the "best interests of the child" in mind they lock his parents up, even though they've broken no law. He'll be left in a strange hospital with no family to comfort him. He's left to wonder if his parents have deserted him and will only suffer mentally. The authorities meanwhile demonstrate they have the power to arrest innocent people, so beware. They also demonstrate a complete lack of commonsense and compassion.
SO, with the "best interests of the child" in mind they lock his parents up, even though they've broken no law. He'll be left in a strange hospital with no family to comfort him. He's left to wonder if his parents have deserted him and will only suffer mentally. The authorities meanwhile demonstrate they have the power to arrest innocent people, so beware. They also demonstrate a complete lack of commonsense and compassion. befriendly
  • Score: 101

7:26pm Mon 1 Sep 14

me0138 says...

Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten.
Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten. me0138
  • Score: -5

7:32pm Mon 1 Sep 14

me0138 says...

saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE.
They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND
[quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE. They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND me0138
  • Score: -17

7:57pm Mon 1 Sep 14

andysaints007 says...

me0138 wrote:
Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten.
What a complete tw*t you are
[quote][p][bold]me0138[/bold] wrote: Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten.[/p][/quote]What a complete tw*t you are andysaints007
  • Score: 24

7:57pm Mon 1 Sep 14

Sir Ad E Noid says...

me0138 wrote:
Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten.
Good, thank you for that complete load of rubbish.
[quote][p][bold]me0138[/bold] wrote: Sack yourself sack yer side kicks and I hope NO one takes there child to your hospital for treatment ,this has been a witch hunt from start to finish,non of your cover up comments is helping a wee boy locked under police guard in a strange country,even his bro,s cant visit him or his parents.SHAME on you all of you SHAME this will never be forgotten.[/p][/quote]Good, thank you for that complete load of rubbish. Sir Ad E Noid
  • Score: 18

7:58pm Mon 1 Sep 14

andysaints007 says...

me0138 wrote:
saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE.
They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND
Go away you numpty
[quote][p][bold]me0138[/bold] wrote: [quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE. They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND[/p][/quote]Go away you numpty andysaints007
  • Score: 6

8:11pm Mon 1 Sep 14

Datarater says...

saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
So have the parents and by my reckoning their's trumps the hospital.
[quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]So have the parents and by my reckoning their's trumps the hospital. Datarater
  • Score: -1

8:20pm Mon 1 Sep 14

mickey01 says...

me0138 wrote:
saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE.
They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND
the n.h.s is in a state cos too many foreigners using it as free treatment
[quote][p][bold]me0138[/bold] wrote: [quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE. They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND[/p][/quote]the n.h.s is in a state cos too many foreigners using it as free treatment mickey01
  • Score: -7

8:28pm Mon 1 Sep 14

ecuk268 says...

mickey01 wrote:
me0138 wrote:
saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE.
They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND
the n.h.s is in a state cos too many foreigners using it as free treatment
What evidence do you have do support this statement?

Or did you just make it up?
[quote][p][bold]mickey01[/bold] wrote: [quote][p][bold]me0138[/bold] wrote: [quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE. They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND[/p][/quote]the n.h.s is in a state cos too many foreigners using it as free treatment[/p][/quote]What evidence do you have do support this statement? Or did you just make it up? ecuk268
  • Score: 13

8:35pm Mon 1 Sep 14

kiz.bartlett says...

Making the decisions that the doctors do is a massively difficult decision.

It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call.

The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else.

I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened.

I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge.
Making the decisions that the doctors do is a massively difficult decision. It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call. The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else. I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened. I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge. kiz.bartlett
  • Score: 12

9:05pm Mon 1 Sep 14

saintsfan76 says...

kiz.bartlett wrote:
Making the decisions that the doctors do is a massively difficult decision.

It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call.

The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else.

I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened.

I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge.
Well said. It was not that long ago funding for a cancer drug was withdrawn to much public consternation especially from those it was thought to be helping. It must be such a delicate balance for those entrusted to make those decisions. I dont think the parents should be locked up away from their child and family. I personally would like to see them all return to this country and then take things forward the right way.
[quote][p][bold]kiz.bartlett[/bold] wrote: Making the decisions that the doctors do is a massively difficult decision. It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call. The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else. I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened. I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge.[/p][/quote]Well said. It was not that long ago funding for a cancer drug was withdrawn to much public consternation especially from those it was thought to be helping. It must be such a delicate balance for those entrusted to make those decisions. I dont think the parents should be locked up away from their child and family. I personally would like to see them all return to this country and then take things forward the right way. saintsfan76
  • Score: 9

9:08pm Mon 1 Sep 14

sotonboy84 says...

mickey01 wrote:
me0138 wrote:
saintsfan76 wrote:
A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.
Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE.
They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND
the n.h.s is in a state cos too many foreigners using it as free treatment
Is this the same 'foreigners' that have a right to medical treatment as EU citizens in an EU country, just as this British child is receiving treatment in Spain?
[quote][p][bold]mickey01[/bold] wrote: [quote][p][bold]me0138[/bold] wrote: [quote][p][bold]saintsfan76[/bold] wrote: A fair statement from the hospital i think. They have a duty of care and all this boys parents had to do was be upfront with them. Once he was discharged from hospital they could have then seeked the treatment they thought was best for their son. I know you cant put a price on a childs life which makes decisions like the hospital made purely down to how beneficial the treatment would be. Its a tough call to make i am sure.[/p][/quote]Cover up statement! 6 hours later they discovered this child missing>??????? some care that is.IT IS ALSO WELL KNOW ENGLISH NHS IS IN CRISIS STATE. They are on a budget to NOT do alternative medicine or choice,this has been nothing but a witch hunt,NO one will ever take there children to that hospital under those doctors ever!!! somethings can not be undone.A wee boy has lost the most precious gift ever,TIME with his loving family,whilst privatized doctors,police and stupid government decided what happens, That we boy will never get back the time denied to him. NO CHILD IS SAFE IN NHS HOSPITALS IN ENGLAND[/p][/quote]the n.h.s is in a state cos too many foreigners using it as free treatment[/p][/quote]Is this the same 'foreigners' that have a right to medical treatment as EU citizens in an EU country, just as this British child is receiving treatment in Spain? sotonboy84
  • Score: 24

10:07pm Mon 1 Sep 14

Renbao says...

Ok fab. The hospital regrets it. So does everyone. Now just accept they've lost lost confidence in your hospital and allow them to seek professional medical help abroad. Just humbly accept and allow other professionals to get this little boy better. Please don't cause this innocent child any more pain and suffering just because you're put out they don't want to be treated by your doctors. Let it go. Get the police to drop the charges and let the family get on with it. That is if you truly want the best for the little boy.
Ok fab. The hospital regrets it. So does everyone. Now just accept they've lost lost confidence in your hospital and allow them to seek professional medical help abroad. Just humbly accept and allow other professionals to get this little boy better. Please don't cause this innocent child any more pain and suffering just because you're put out they don't want to be treated by your doctors. Let it go. Get the police to drop the charges and let the family get on with it. That is if you truly want the best for the little boy. Renbao
  • Score: 17

11:01pm Mon 1 Sep 14

BeyondImagination says...

The parents imprisonment is down to the police now. It's time they backed down and allowed the Kings to be released to give little Ashya the care he needs.
The parents imprisonment is down to the police now. It's time they backed down and allowed the Kings to be released to give little Ashya the care he needs. BeyondImagination
  • Score: 8

11:09pm Mon 1 Sep 14

londoncalling says...

The treatment the Southampton hospital is offering is 10 years behind the treatments offered in US, France, Switzerland, Spain and even Czech Republic. This father was clever enough to do the research and not take the **** answers. Would this doctor recommend the classic treatment to his own child.. I bet not..
The treatment the Southampton hospital is offering is 10 years behind the treatments offered in US, France, Switzerland, Spain and even Czech Republic. This father was clever enough to do the research and not take the **** answers. Would this doctor recommend the classic treatment to his own child.. I bet not.. londoncalling
  • Score: 8

11:56pm Mon 1 Sep 14

kiz.bartlett says...

londoncalling wrote:
The treatment the Southampton hospital is offering is 10 years behind the treatments offered in US, France, Switzerland, Spain and even Czech Republic. This father was clever enough to do the research and not take the **** answers. Would this doctor recommend the classic treatment to his own child.. I bet not..
He most likely would. Proton therapy is still in its early stages at the moment, there is not enough research into the side effects etc.

Proton therapy is in this country, but only for certain cancers while they do rigorous trials to make sure this is the best treatment for a patient.
[quote][p][bold]londoncalling[/bold] wrote: The treatment the Southampton hospital is offering is 10 years behind the treatments offered in US, France, Switzerland, Spain and even Czech Republic. This father was clever enough to do the research and not take the **** answers. Would this doctor recommend the classic treatment to his own child.. I bet not..[/p][/quote]He most likely would. Proton therapy is still in its early stages at the moment, there is not enough research into the side effects etc. Proton therapy is in this country, but only for certain cancers while they do rigorous trials to make sure this is the best treatment for a patient. kiz.bartlett
  • Score: 5

12:12am Tue 2 Sep 14

kiz.bartlett says...

saintsfan76 wrote:
kiz.bartlett wrote:
Making the decisions that the doctors do is a massively difficult decision.

It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call.

The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else.

I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened.

I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge.
Well said. It was not that long ago funding for a cancer drug was withdrawn to much public consternation especially from those it was thought to be helping. It must be such a delicate balance for those entrusted to make those decisions. I dont think the parents should be locked up away from their child and family. I personally would like to see them all return to this country and then take things forward the right way.
Thank you for the kind comment. I only feel more understanding because my nephew has received amazing care from this hospital, and im also in a sort of situation myself.

After losing our firstborn, our newly born son now faces possible brain damage due to complications at birth. Its not as simple as saying "yes or no", it takes a lot more than that. It takes extensive amounts of research, talking, analysis etc to reach the best possible decision for the child. And i can understand the families situation to an extent, and i know its devastating.

But what i also know, is the huge amounts of work these doctors do in order to get the best possible care for a child. I think many people forget that if the doctor makes the wrong decision for any one of their patients, they face a lot of legal issues and a potential life ruiner.
[quote][p][bold]saintsfan76[/bold] wrote: [quote][p][bold]kiz.bartlett[/bold] wrote: Making the decisions that the doctors do is a massively difficult decision. It takes a lot of work, time and bonding with the patient to make the best port of call for the patient. The fact that the brain is also the most complex organ in the human body and being a child, it makes it very difficult to make a judgement call. The doctors would have been in talks with many other departments, including neurology which are very good at Southampton. The judgement call was only ever in the best interest of the child and no one else. I don't agree that they should be locked up, but at the time the doctors, police or anyone else knew the intentions of the parents. If this were not an act of compassion, there would have been a big uproar asking where the police and doctors were when this happened. I'm glad the doctors have released this statement. The family must be having such a difficult time right now which is understandable, but it must also be quite degrading for the doctors to receive so much abuse for making the best decision based on their knowledge.[/p][/quote]Well said. It was not that long ago funding for a cancer drug was withdrawn to much public consternation especially from those it was thought to be helping. It must be such a delicate balance for those entrusted to make those decisions. I dont think the parents should be locked up away from their child and family. I personally would like to see them all return to this country and then take things forward the right way.[/p][/quote]Thank you for the kind comment. I only feel more understanding because my nephew has received amazing care from this hospital, and im also in a sort of situation myself. After losing our firstborn, our newly born son now faces possible brain damage due to complications at birth. Its not as simple as saying "yes or no", it takes a lot more than that. It takes extensive amounts of research, talking, analysis etc to reach the best possible decision for the child. And i can understand the families situation to an extent, and i know its devastating. But what i also know, is the huge amounts of work these doctors do in order to get the best possible care for a child. I think many people forget that if the doctor makes the wrong decision for any one of their patients, they face a lot of legal issues and a potential life ruiner. kiz.bartlett
  • Score: 4

12:25am Tue 2 Sep 14

bucktoom says...

I wish that people would remember that Drs/nurses/ health professionals train and subsequently continue research into specialist areas with the objective of giving all their patients a fighting chance of a good quality of life. They don't want to give people false hope or make them suffer treatments that have no evidence of being effective (anecdotal evidence doesn't count)
There is no cover up! Ask yourselves, would you withhold treatment on a child (or anyone) for the sakes of money or government pressure? I know I couldn't so please stop demonising a system that we're lucky to have.
I wish that people would remember that Drs/nurses/ health professionals train and subsequently continue research into specialist areas with the objective of giving all their patients a fighting chance of a good quality of life. They don't want to give people false hope or make them suffer treatments that have no evidence of being effective (anecdotal evidence doesn't count) There is no cover up! Ask yourselves, would you withhold treatment on a child (or anyone) for the sakes of money or government pressure? I know I couldn't so please stop demonising a system that we're lucky to have. bucktoom
  • Score: 9
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